Ganaxolone, Glucose Transporter deficiency syndrome (GLUT1), johns, hopkins, baltimore, md


Expand the use of the diet to more children who need it, specifically those with infantile spasms.

Promote the use of dietary therapies as a first-line option (rather than last resort).

Educate neurologists, parents, dietitians, and pediatricians about the use of dietary therapies (through up-to-date information, links, webinars, etc.)

Help parents recognize infantile spasms early

Support parents who are using dietary therapies for their children (e.g. support group/classes)

Provide resources for research to centers involved in ketogenic diet research.

Partner with the John M. Freeman Pediatric Epilepsy Center.